Friday, September 21, 2012

Well its been two years since my Liberation Procedure and I have continued to improve and maintain what I have.  Testing for blood flow has shown no restenosis and the blood flow is better than it was after the procedure.

I have not taken any MS medication since August 2010 and advil must also be down in sales.  No migraines since either.

I now have 3 grand children to chase around and love every minute of it.

Thank you Dr. Zamboni and my husband Dalton.


Friday, October 7, 2011

One Year Post Liberation

Hard to believe one year has passed, much of it seems like a dream or something you would read about not actually happening to me.  The year has gone by with some MS symptoms, but everything is stable.

I’ve had several follow up Doppler tests and over the past year and have no sign of restenosis.  In fact upon the last test the results showed the veins are open even more.  Next follow up will be in one year.

I’ve thought many time’s of what a shame that this opportunity is being missed out on by so many.  Our Governments are taking some action but not nearly enough, trying to appease the Neurologists, MS Society and Drug companies.  We just read where an MS patient had the Liberation Treat such as I and the hospital refused follow treatment until he threatened to go to the press.  Ironic part is the hospital will treat patients who stand outside smoking cigarettes and returns back for further treatment.

Wednesday, January 5, 2011

Month 3 Post Liberation

Well month 3 has passed and veins are still open.  Had a Doppler in Barrie December 11-10 and the blood is still flowing.  They said if you make it past the 6 month mark you are not likely to restenois.

Continuing on with Physio twice a week, working on balance strength and posture.

Scheduled for an MRI this coming Sunday, which will help to decide if I go back on any MS Therapy Drug treatments.

Friday, November 26, 2010

Second Month Post Liberation

Well its hard to believe 2 months have past since my Liberation Procedure in Poland.  We continue to monitor the http://ccsvi-ms.ning.com/ website and answer phone calls to others heading to Poland.  Our daughter said "I can't believe you are actually managing your own health care and booked it on the Internet".  Not much choice!

I am continuing to show progress and take personal training twice a week, which is a big help building strength, increasing flexibility and improving balance.  I do have some MS symptoms but the improvement from Sept. is huge.

Nov. 24, 2010 we saw the Neurologist and he was surprised we went to Poland and stopped taking the Avonex.  Really what could he say as I am better than he has seen me in over 3 years.  He still offered a pep talk about staying on Avonex.



 

Friday, October 22, 2010

One month Post Liberation

Well its hard to believe one month to the day post my Liberation Procedure.  Today is October 22, 2010 and I can't believe the difference it has made.  Before I left for Poland I was using a walker, speech was slurred, feet and hands were cold, had badder issues, huge amounts of fatigue and brain fog as known to MS patients.

Today I am walking without a walker or cane, speech has fully returned, feet and hands are warm, bladder issues improved, fatigue has improved and brain fog is gone.

I am driving again, actually driving myself to Physio and my speech therapy has been cancelled.  The Doctors in Poland said I will continue to improve over the next 3 to 6 months.

If you know anyone with MS who is questioning the Liberation Procedure, this should serve as comfort to them.  Please call your MP to complain that this is not being offered here in Canada for others.  It litterly gave me my life back.

Doctor Zamboni you are my HERO!!  KAREN aka Kas

Thursday, September 30, 2010

SEPTEMBER 30 2010

HOME SWEET HOME
Well the 24hr trek is over, we're home and getting over our jet lag!  Coming west is much easier.
Hope all of you enjoyed following along our journey to Poland, Dalt says another chapter for our memory book and one we will never forget. 
I just finished booking my 3 month follow up with Dr. MacDonald in Barrie, for a Doppler scan to check my veins, making sure they are still open. Hopefully he can correspond with Euro Medic in Poland to help further their study.
This will be the last posting of  Kas Goes To Katowice,  thank you all for your encouragement, well wishes and prayers. 

Kas  
PS: Just went for a 1/2 km walk !!!!!! 

Monday, September 27, 2010

SEPTEMBER 27, 2010

Hi Guys
Well its the last night, bags are packed and everything is ready by the door.  Being picked up at 4:00 am, leave Poland @ 6:40 am, leave Germany at 1:15pm arrive in Ottawa @3:50.  I know what you're thinking?  What a short flight.  Well add on 6 hours.
I can't say enough for the Polish hospitality from Euro Medic, the hospital staff, drivers and the hotel staff,  what a bunch of professionals.
Before leaving Canada a very wise man said to me, " Karen expect nothing and accept everything".  He was of course talking about the Liberation Procedure. Well I am leaving here not using a walker, regained my speech, brain fog is gone, warm feet and hands and better colour in my legs.
I couldn't of done any of this without my 'rock' he has been with me all the way, and what strength he gave me, more 'placebo' I guess.
I can't wait to get home, and see everyone !
See  you all soon
Kas