tag:blogger.com,1999:blog-87049292903325916362024-03-04T20:40:28.797-08:00KAS goes to KatowiceKashttp://www.blogger.com/profile/08002233357975908173noreply@blogger.comBlogger18125tag:blogger.com,1999:blog-8704929290332591636.post-50600327495697500412012-09-21T18:34:00.000-07:002012-09-21T18:35:21.354-07:00Well its been two years since my Liberation Procedure and I have continued to improve and maintain what I have. Testing for blood flow has shown no restenosis and the blood flow is better than it was after the procedure.<br />
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I have not taken any MS medication since August 2010 and advil must also be down in sales. No migraines since either.<br />
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I now have 3 grand children to chase around and love every minute of it.<br />
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Thank you Dr. Zamboni and my husband Dalton.<br />
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<br />Kashttp://www.blogger.com/profile/08002233357975908173noreply@blogger.com1tag:blogger.com,1999:blog-8704929290332591636.post-61146743563247601442011-10-07T17:47:00.000-07:002011-10-07T17:47:35.433-07:00One Year Post Liberation<div class="MsoNormal" style="margin: 0cm 0cm 10pt;"><span style="font-family: Calibri;"><span style="mso-spacerun: yes;"> </span>Hard to believe one year has passed, much of it seems like a dream or something you would read about not actually happening to me.<span style="mso-spacerun: yes;"> </span>The year has gone by with some MS symptoms, but everything is stable.</span></div><br />
<div class="MsoNormal" style="margin: 0cm 0cm 10pt;"><span style="font-family: Calibri;">I’ve had several follow up Doppler tests and over the past year and have no sign of restenosis.<span style="mso-spacerun: yes;"> </span>In fact upon the last test the results showed the veins are open even more.<span style="mso-spacerun: yes;"> </span>Next follow up will be in one year.</span></div><br />
<div class="MsoNormal" style="margin: 0cm 0cm 10pt;"><span style="font-family: Calibri;">I’ve thought many time’s of what a shame that this opportunity is being missed out on by so many.<span style="mso-spacerun: yes;"> </span>Our Governments are taking some action but not nearly enough, trying to appease the Neurologists, MS Society and Drug companies.<span style="mso-spacerun: yes;"> </span>We just read where an MS patient had the Liberation Treat such as I and the hospital refused follow treatment until he threatened to go to the press.<span style="mso-spacerun: yes;"> </span>Ironic part is the hospital will treat patients who stand outside smoking cigarettes and returns back for further treatment. </span></div>Kashttp://www.blogger.com/profile/08002233357975908173noreply@blogger.com0tag:blogger.com,1999:blog-8704929290332591636.post-69901040243812190092011-01-05T17:41:00.000-08:002011-01-05T17:41:33.774-08:00Month 3 Post LiberationWell month 3 has passed and veins are still open. Had a Doppler in Barrie December 11-10 and the blood is still flowing. They said if you make it past the 6 month mark you are not likely to restenois.<br />
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Continuing on with Physio twice a week, working on balance strength and posture.<br />
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Scheduled for an MRI this coming Sunday, which will help to decide if I go back on any MS Therapy Drug treatments.Kashttp://www.blogger.com/profile/08002233357975908173noreply@blogger.com0tag:blogger.com,1999:blog-8704929290332591636.post-47545630668074120782010-11-26T16:54:00.000-08:002010-11-26T16:54:27.441-08:00Second Month Post LiberationWell its hard to believe 2 months have past since my Liberation Procedure in Poland. We continue to monitor the <a href="http://ccsvi-ms.ning.com/">http://ccsvi-ms.ning.com/</a> website and answer phone calls to others heading to Poland. Our daughter said "I can't believe you are actually managing your own health care and booked it on the Internet". Not much choice!<br />
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I am continuing to show progress and take personal training twice a week, which is a big help building strength, increasing flexibility and improving balance. I do have some MS symptoms but the improvement from Sept. is huge.<br />
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Nov. 24, 2010 we saw the Neurologist and he was surprised we went to Poland and stopped taking the Avonex. Really what could he say as I am better than he has seen me in over 3 years. He still offered a pep talk about staying on Avonex.<br />
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Kashttp://www.blogger.com/profile/08002233357975908173noreply@blogger.com0tag:blogger.com,1999:blog-8704929290332591636.post-73030920632059631872010-10-22T19:09:00.000-07:002010-10-22T19:09:44.317-07:00One month Post LiberationWell its hard to believe one month to the day post my Liberation Procedure. Today is October 22, 2010 and I can't believe the difference it has made. Before I left for Poland I was using a walker, speech was slurred, feet and hands were cold, had badder issues, huge amounts of fatigue and brain fog as known to MS patients.<br />
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Today I am walking without a walker or cane, speech has fully returned, feet and hands are warm, bladder issues improved, fatigue has improved and brain fog is gone.<br />
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I am driving again, actually driving myself to Physio and my speech therapy has been cancelled. The Doctors in Poland said I will continue to improve over the next 3 to 6 months.<br />
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If you know anyone with MS who is questioning the Liberation Procedure, this should serve as comfort to them. Please call your MP to complain that this is not being offered here in Canada for others. It litterly gave me my life back.<br />
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Doctor Zamboni you are my HERO!! KAREN aka KasKashttp://www.blogger.com/profile/08002233357975908173noreply@blogger.com0tag:blogger.com,1999:blog-8704929290332591636.post-42031416401853280002010-09-30T16:47:00.000-07:002010-09-30T16:47:39.505-07:00SEPTEMBER 30 2010<strong><u><em>HOME SWEET HOME</em></u></strong><br />
Well the 24hr trek is over, we're home and getting over our jet lag! Coming west is much easier.<br />
Hope all of you enjoyed following along our journey to Poland, Dalt says another chapter for our memory book and one we will never forget. <br />
I just finished booking my 3 month follow up with Dr. MacDonald in Barrie, for a Doppler scan to check my veins, making sure they are still open. Hopefully he can correspond with Euro Medic in Poland to help further their study.<br />
This will be the last posting of Kas Goes To Katowice, thank you all for your encouragement, well wishes and prayers. <br />
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Kas <br />
PS: Just went for a 1/2 km walk !!!!!! <br />
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgNGjuWhnu_L5d5Ev_0LNmCxJ7UiVJC14uuo5fhZ9m_w6u5ZGSCx5t8ZQ3pxafPDWow8Gheiwb3be7vCQ74q8IUxukb0fjEdIrb9a_NdV5JnO8rkUYbdULDSJht_i_wB0hlJK7igJsZ56yk/s1600/Poland+10+003.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" px="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgNGjuWhnu_L5d5Ev_0LNmCxJ7UiVJC14uuo5fhZ9m_w6u5ZGSCx5t8ZQ3pxafPDWow8Gheiwb3be7vCQ74q8IUxukb0fjEdIrb9a_NdV5JnO8rkUYbdULDSJht_i_wB0hlJK7igJsZ56yk/s1600/Poland+10+003.JPG" /></a></div>Kashttp://www.blogger.com/profile/08002233357975908173noreply@blogger.com1tag:blogger.com,1999:blog-8704929290332591636.post-91972617731777539972010-09-27T11:19:00.000-07:002010-09-27T11:19:17.291-07:00SEPTEMBER 27, 2010Hi Guys<br />
Well its the last night, bags are packed and everything is ready by the door. Being picked up at 4:00 am, leave Poland @ 6:40 am, leave Germany at 1:15pm arrive in Ottawa @3:50. I know what you're thinking? What a short flight. Well add on 6 hours.<br />
I can't say enough for the Polish hospitality from Euro Medic, the hospital staff, drivers and the hotel staff, what a bunch of professionals.<br />
Before leaving Canada a very wise man said to me, " Karen expect nothing and accept everything". He was of course talking about the Liberation Procedure. Well I am leaving here not using a walker, regained my speech, brain fog is gone, warm feet and hands and better colour in my legs.<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEga-pgyKQBmYdxl-0j1ULXzZ1uFmkCOOt862glhxvKlRNGlf6-KBkmww-P9RYdPuQ-OEmQveYSS5hyphenhyphen0VOymy65pKUK29scb3EAOaNl1NDrieVhGR5JkCcVYX4Npan6vqQ9rmgWvcQan7tKt/s1600/Results.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" px="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEga-pgyKQBmYdxl-0j1ULXzZ1uFmkCOOt862glhxvKlRNGlf6-KBkmww-P9RYdPuQ-OEmQveYSS5hyphenhyphen0VOymy65pKUK29scb3EAOaNl1NDrieVhGR5JkCcVYX4Npan6vqQ9rmgWvcQan7tKt/s320/Results.JPG" width="240" /></a></div>I couldn't of done any of this without my 'rock' he has been with me all the way, and what strength he gave me, more 'placebo' I guess. <br />
I can't wait to get home, and see everyone !<br />
See you all soon<br />
Kas Kashttp://www.blogger.com/profile/08002233357975908173noreply@blogger.com1tag:blogger.com,1999:blog-8704929290332591636.post-12418108388228676162010-09-26T12:33:00.000-07:002010-09-26T12:33:14.829-07:00SEPTEMBER 26 2010Hi All<br />
Well not much to update tonight. Just as the days pass things continue to get better.<br />
For some therapy Dalton took me to the mall Big mistake! Shoes, shoes shoes 2", 4" or 6" heels everyone here wears them with jeans or whatever. I decided on the 2" after some <span style="font-family: Calibri;">persuasion</span> from my therapist.<br />
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjO99S2b7MZQferf3keZlHvb2uOtuAbfv4Bdmm18uH4yj9BTzhCwNxosT7WRLbp18E3SFIViV06jR7we546GRUwNSOqonEeFK6sCQFU1ka2bRiZzEY9yFTMYsdcGg8kPh2kYx7b2zrIEsH3/s1600/Shoes.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" px="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjO99S2b7MZQferf3keZlHvb2uOtuAbfv4Bdmm18uH4yj9BTzhCwNxosT7WRLbp18E3SFIViV06jR7we546GRUwNSOqonEeFK6sCQFU1ka2bRiZzEY9yFTMYsdcGg8kPh2kYx7b2zrIEsH3/s320/Shoes.JPG" width="320" /></a></div>One last day before we come home. Can't wait.Kashttp://www.blogger.com/profile/08002233357975908173noreply@blogger.com2tag:blogger.com,1999:blog-8704929290332591636.post-34255477617828083272010-09-25T11:15:00.000-07:002010-09-25T11:15:53.973-07:00SEPTEMBER 25 2010Hi All<br />
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Still continuing getting some R&R. We did go out to the local harley shop to get some Tshirts, then came back to a favourite restaurant. Its down town and called THE PATIO. We had very good home made pizza and Polish beer. Dalt keeps telling me how good it is as I can't have any alcohol x 7 days. (so Keri I will be ready when I come home).<br />
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Tomorrow we're going to take the local street car to the mall maybe find some nice shoes, everyone over here wears beautiful shoes with whatever they are wearing !<br />
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Kashttp://www.blogger.com/profile/08002233357975908173noreply@blogger.com1tag:blogger.com,1999:blog-8704929290332591636.post-30492931894857215992010-09-24T13:03:00.000-07:002010-09-24T13:03:16.095-07:00SEPTEMBER 24, 2010Hi All<br />
Well another full day has past since since my procedure. I had a final and follow up doppler today and my viens are great. Blood is flowing perfectly and in the right direction. He said he would like to see me in 6 months. We'll see?<br />
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We needed a little change of pace and went to Krakow for a tour. Very busy place with tourists. We finally had a chance to try some progie. They were an appetizer but served us as a meal.<br />
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Went to operating room @ 12:35 and out at 1:00. They completed 5 procedures today.<br />
Karen's right jugular and azagoz viens were ok but the left jugular was blocked. Dr's. performed angiopasty and said the blood flow was great.<br />
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5:00 pm Karen got up and her brain fog was gone, she had warm feet and hands, balance was much better as well as her speech. She is doing very well but had to remain in the hospital over night. There was some tears when I left. Not sure they were all hers?Kashttp://www.blogger.com/profile/08002233357975908173noreply@blogger.com5tag:blogger.com,1999:blog-8704929290332591636.post-18552371039204785022010-09-21T13:06:00.000-07:002010-09-21T13:06:55.422-07:00SEPTEMBER 21 2010Hey All<br />
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Finished all the testing today now just waiting for morning to come!!! Not much else went on today no sightseeing only to and from appts. All of the others are here now. Some from England, USA and Canada. Euro Medic performs 6 procedures a day here. They have now completed more than 700 procedures.<br />
This is our little mobile that they drive you around in for appts, hospital & transfers.<br />
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Kashttp://www.blogger.com/profile/08002233357975908173noreply@blogger.com2tag:blogger.com,1999:blog-8704929290332591636.post-73517082640909017152010-09-20T12:13:00.000-07:002010-09-20T12:13:25.829-07:00SEPTEMBER 20, 2010<span style="font-family: "Trebuchet MS", sans-serif;">Hi All </span><br />
<span style="font-family: "Trebuchet MS", sans-serif;">We went out for some local site seeing again today. We took a taxi up to see the statue of Pope JP.</span><br />
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<span style="font-family: "Trebuchet MS", sans-serif;"> Had our Polish Supper. The Pol's love their food almost as much as the Italians. Dalt says the beer isn't to bad either. Tomorrow things start to get under way. We see more MS patients showing up today which we expect to be part of our group. KAS</span>Kashttp://www.blogger.com/profile/08002233357975908173noreply@blogger.com1tag:blogger.com,1999:blog-8704929290332591636.post-81919216694372862512010-09-19T09:56:00.000-07:002010-09-19T09:56:21.034-07:00SEPTEMBER 19, 2010Hi Guys<br />
Just had another day of getting around and seeing few things. Some shoe stores and good restuarants. Below is our hotel in the back ground.<br />
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</div><div style="text-align: left;">We are reviewing the schedule Tuesday Eye exam and MRV. Wed. blood work , Neurologist consultation and procedure around 5:30 pm here or 11:30 am Ont. time.</div><div style="text-align: left;">Starting to get nervous!</div><div style="text-align: left;">KAS</div>Kashttp://www.blogger.com/profile/08002233357975908173noreply@blogger.com1tag:blogger.com,1999:blog-8704929290332591636.post-86679950853543036122010-09-18T11:51:00.000-07:002010-09-18T11:51:54.501-07:00SEPTEMBER 18, 2010Well I think the jet lag is over. We missed breakfast but the sleep was good. Finding our way around a bit, went to market, found Gelato ect. Its a very old city, very clean and no homeless people.<br />
We had a great dinner, meals are great. Here's the sign of HOPE we came for.<br />
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgTNODCNv1Gw3V4hPlr6GoVNaNlRvCFBru0QXx3YzqY2IPHw4x0oF5P_UVVXoFAmyFWqzMJ05_RZm_SJepChdZedaTwDfnEoOhI42VqdxblchcJvvxIP6ahDwEhZrUHFcrKS5zqrweRW3Sx/s1600/Sign+of+Hope.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" qx="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgTNODCNv1Gw3V4hPlr6GoVNaNlRvCFBru0QXx3YzqY2IPHw4x0oF5P_UVVXoFAmyFWqzMJ05_RZm_SJepChdZedaTwDfnEoOhI42VqdxblchcJvvxIP6ahDwEhZrUHFcrKS5zqrweRW3Sx/s320/Sign+of+Hope.JPG" /></a></div>Tomorrow we may take the train into Krakow.<br />
KasKashttp://www.blogger.com/profile/08002233357975908173noreply@blogger.com3tag:blogger.com,1999:blog-8704929290332591636.post-31080912808738929492010-09-17T06:19:00.000-07:002010-09-17T06:19:23.193-07:00SEPTEMBER 17 2010The eagles have landed very tired and hungry!!!!<br />
Euromedic was waiting at the airport for us holding a big sign with my name on it, a bit over whelming :( but I was ok after that :), he is very nice and gave us an updated itinerary for the week.<br />
Our hotel is super nice with a great view of the city we have scoped out the closest Harley shop save that for tomorrow after some sleep!!!<br />
Will talk soon have to go and eat something with substance<br />
Love<br />
Kas Kashttp://www.blogger.com/profile/08002233357975908173noreply@blogger.com2tag:blogger.com,1999:blog-8704929290332591636.post-66923683519200905162010-09-15T18:51:00.000-07:002010-09-15T18:51:01.943-07:00September 15th 2010Today is the day for packing, I am excited, nervous & scared but I have my rock with me (I hear you laughing Sharon). My rock is Dalton & I couldn't do this without him.<br />
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We fly out of Ottawa tomorrow @ 5:30 pm landing in Frankfurt, Germany 6:00am lay over till noon then off to Katowice, Poland landing around 1:30pm.<br />
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Thank you all family & friends for your prayers, wishes & support.Kashttp://www.blogger.com/profile/08002233357975908173noreply@blogger.com2